One Brave Boy

15 May 2012

Wow!  What a week it has been…I can’t even remember where my last post ended and this one began.  Last week, we came home from the hospital at the beginning of the week (I think!), and had a pretty great week.  Ty golfed with his dad and brother and friends every day that he was home.  Saturday, he was doing so well – spent three hours walking the mall shopping with Erika (he has never done that on his best day!), golfed with his dad (and beat him, I might add!).  Darren, Tyler and I went to Training Table that night to grab a bite to eat.  Halfway through his dinner, he got a strange look on his face, and said, “We need to go now…I’m not feeling good”.  We headed out of there, and he threw up in the car – lots of fresh blood.  It’s such a horrifying feeling when that happens. We hurried home and packed a quick bag and headed for the hospital.  When we talked to them on the way down, they were hoping that maybe we could just ‘tank’ him up with blood and plasma to help his blood clot, and send him home by morning.  We checked into the hospital about nine Saturday night and were hoping to be home by three in the morning.

As the night progressed, things were not getting any better.  Tyler was continuing to vomit blood and not just small amounts.  It was actually coming out of him as fast or faster than they were transfusing it into him.  His hematocrit levels were dropping quickly.  Tyler was looking worse and worse by the minute, and Darren and I were terrified.

Early Sunday morning, they had called the oncology team, the GI team, and a surgery team together to discuss a solution, if any.  They called Darren and I out into the hallway to discuss their options with us.  The GI team said if they tried to go in with a scope there was just too high a risk of perforating the stomach.  He pretty much refused to do that procedure.  The surgery team said they could open Tyler up and try to find the problem, but he probably would not survive the surgery, and whatever they fixed still wouldn’t fix the cancer.  The radiation oncologist said that they could try to go in through an artery in his leg and find the bleed and burn it, but the risks far outweighed the benefits.  When I asked what he would do if it was his son, he said, “take him home.”  We went into the room and told Tyler what the doctors had just shared with us.  He took a deep breath and said, “Let’s go home, I’m not afraid.”  My most difficult day as a mother.  Right after they told us, someone brought in chocolates for Mother’s Day – not a holiday I want to remember this year.

The doctors got us ready in a hurry to go home.  They did not think Tyler would make it through the night Sunday night.  We brought Tyler home Sunday night to be here with the family and not just in a dark, cold hospital room.  The doctors had called hospice and they were here to meet us when we got home.  It was the most surreal feeling I have ever experienced, thinking I knew what lay in store for us that night.  When Tyler woke up on Monday morning, he wanted to go golfing.  The whole family packed up and headed to Davis Golf Course and played nine holes.  It was very hard to watch – Tyler could hardly swing the club.  I didnt know if we were going to have to call an ambulance out on the golf course.  But I don’t know how he does it.  He still could hit the ball better than most on their best day!  After seven holes, he was too worn out to play anymore.  We came home, got ready for a family picture, and had some friends come visit Tyler, and went to bed again.  I cannot describe at all how it is to try and rest when one you love has health like this.  Every move Tyler made had us jumping up and making sure he was still breathing.

Tuesday morning, Tyler decided he wanted to finish the radiation treatments he started and see if it could make a difference.  He is not done fighting…Long story short, Tyler was not expected to make it through the night Sunday night.  It is Tuesday night now and he is still here and ready to fight more.  We know that Tyler will be with us for as long as the Lord has planned for him.  We are grateful for every second we have with him, as we are with every one of our children.  We have had some conversations with him and our other children that I never imagined I would have to have.  Tyler is not afraid – he knows where he is going and that what is in store for him there is wonderful.  He knows that Heavenly Father is in charge and he will leave this earth when his appointed time is here, whether it is tomorrow, next year, or in fifty years.  We still have great hope for his future.  The bleeding has stopped and he seems to be feeling a bit better.  I have to believe it is because the Lord hears the prayers of those who love Tyler.   We cannot express how grateful we are for the love and support of family, friends, and the community.  I am so sorry that I cannot answer all of the emails, texts, and messages.  I love hearing from you and I love your words of support!  Thank you for keeping our family in your thoughts and prayers.  Tyler is truly Fighting to the Finish – thanks for helping him!

Tyler - Fighting to the Finish

 

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